The effect of parental support on the quality of life of children with thalassemia

Wuri Utami and Mohd Nazri Mohd Daud and Khalid Mokti (2024) The effect of parental support on the quality of life of children with thalassemia. The Effect of Parental Support on the Quality of Life of Children with Thalassemia, 24. pp. 49-55. ISSN 2197-5248

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Abstract

Introduction: Thalassaemia is a blood disorder that is passed down from parents to their children. Patients should receive blood transfusions regularly. Children with thalassaemia will undergo treatment for a long time. These extreme impacts cause various physical, emotional, social, and environmental disorders that can reduce the quality of life of people with persistent thalassaemia major. Objectives: This study aims to determine the effect of family support on the quality of life in children with thalassaemia major. Methods: This research is a type of quantitative correlation with the cross-sectional approach. The sample of all thalassemia patients in AprilAugust 2022 until 2024 Agustus, was 120 pediatric patients selected using the total sampling technique. Bivariate analysis using chi square. Results: The age characteristics of children with thalassaemia were 83 (69.2%), the majority of females were 65 (54.2%). Family support was mostly positive for 63 (52.5%) and the quality of life of children with thalassaemia was mostly for 64 respondents (65.8%) in the normal category. There is a relationship of family support for the quality of life of children with thalassaemia at the Dr. Soedirman Regional General Hospital, Kebumen. Conclusions: Support family and friends, as well as providing a adequate for parents is very important in improving the quality of life of children Thalassaemia.

Item Type:	Article
Keyword:	Quality of life, Family support
Subjects:	H Social Sciences > HQ The family. Marriage. Woman > HQ1-2044 The Family. Marriage. Women R Medicine > RC Internal medicine > RC31-1245 Internal medicine > RC581-951 Specialties of internal medicine > RC633-647.5 Diseases of the blood and blood-forming organs
Department:	FACULTY > Faculty of Medicine and Health Sciences
Depositing User:	SITI AZIZAH BINTI IDRIS -
Date Deposited:	20 Nov 2024 11:08
Last Modified:	20 Nov 2024 11:08
URI:	https://eprints.ums.edu.my/id/eprint/41975

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